[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"trial:NCT04690374":3,"trial-entities:NCT04690374":75,"trial-summary:NCT04690374":78},{"id":4,"nct_id":4,"org_study_id":5,"brief_title":6,"official_title":7,"overall_status":8,"completion_date":9,"status_verified_date":10,"last_update_date":11,"start_date":12,"sponsor_name":13,"lead_sponsor_class":14,"has_dmc":15,"brief_summary":16,"detailed_description":15,"conditions":17,"keywords":19,"study_type":21,"primary_purpose":15,"phases":22,"enrollment_info":23,"interventions":26,"primary_outcomes":27,"secondary_outcomes":31,"sex":32,"minimum_age":15,"maximum_age":15,"healthy_volunteers":33,"eligibility_criteria":34,"std_ages":42,"locations":46,"central_contacts":65,"overall_officials":69,"references":71,"see_also_links":72},"NCT04690374","20-551","Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor","Registry for Patients With Desmoplastic Small Round Cell Tumor","RECRUITING","2027-12","2026-01","2026-01-12","2020-12-22","Memorial Sloan Kettering Cancer Center","OTHER",null,"This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease.\n\nThe purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.",[18],"Desmoplastic Small Round Cell Tumor",[20,5],"Patient registry","OBSERVATIONAL",[],{"count":24,"type":25},250,"ESTIMATED",[],[28],{"measure":6,"description":29,"timeFrame":30},"The aim of this study is the collection of data.","7 years",[],"ALL",false,{"inclusion":35,"exclusion":39,"raw_text":41},[36,37,38],"Participants must have a diagnosis of desmoplastic small round cell tumor","Participants may be of any age as long as the appropriate consent and assent may be obtained","Willing to provide historical and longitudinal clinical data",[40],"Participant unwilling to provide consent or share historical and longitudinal clinical data","Inclusion Criteria:\n\n* Participants must have a diagnosis of desmoplastic small round cell tumor\n* Participants may be of any age as long as the appropriate consent and assent may be obtained\n* Willing to provide historical and longitudinal clinical data\n\nExclusion Criteria:\n\n* Participant unwilling to provide consent or share historical and longitudinal clinical data",[43,44,45],"CHILD","ADULT","OLDER_ADULT",[47],{"facility":48,"status":8,"city":49,"state":49,"zip":50,"country":51,"contacts":52,"geoPoint":62},"Memorial Sloan Kettering Cancer Center (All Protocol Activities)","New York","10065","United States",[53,57,60],{"name":54,"role":55,"phone":56},"Emily Slotkin, MD","CONTACT","833-675-5437",{"name":58,"role":55,"phone":59},"Shakeel Modak, MD","1-833-675-5437",{"name":54,"role":61},"PRINCIPAL_INVESTIGATOR",{"lat":63,"lon":64},40.71427,-74.00597,[66,68],{"name":54,"role":55,"phone":59,"email":67},"slotkine@mskcc.org",{"name":58,"role":55,"phone":59},[70],{"name":54,"affiliation":13,"role":61},[],[73],{"label":13,"url":74},"http:\u002F\u002Fwww.mskcc.org\u002Fmskcc\u002Fhtml\u002F44.cfm",{"nct_id":4,"conditions":76,"biomarkers":77},[18],[],{"nct_id":4,"found":79,"summary":80,"prompt_version":90},true,{"design":81,"status":82,"heading":83,"summary":84,"follow_up":85,"word_count":86,"commitments":87,"compensation":88,"drugs_mentioned":89},"This is an observational study, meaning researchers will collect health information without providing any specific treatments. It plans to include 250 participants.","completed","Registry for Desmoplastic Small Round Cell Tumor","This is a patient registry for individuals with Desmoplastic Small Round Cell Tumor (DSRCT). A registry collects health information to help researchers better understand a specific disease. The goal of this registry is to create a database of information about DSRCT. This database will be used for current and future research to learn more about DSRCT. You can join if you have a DSRCT diagnosis, are willing to share your past and ongoing health information, and can provide consent. This study is collecting information over 7 years.","Information will be collected for 7 years.",87,"You would need to provide historical and ongoing clinical data.","Not stated in the trial record.",[],"v2"]