This study is looking at inherited kidney and other urologic (urinary system) cancers, including Von Hippel-Lindau (VHL) disease and familial renal cancer. Researchers want to understand how these conditions show up in people, how they progress over time, and what genetic changes cause them. They will also look for new inherited urologic cancers that haven't been identified yet. The goal is to connect specific genetic changes with how the disease affects people, including their age at diagnosis, symptoms, and how often the cancer comes back. This study is for people aged 2 and older, of all genders, who have a known or suspected inherited urologic cancer.

Study design

This is an observational study with a planned enrollment of 5000 participants. It is not testing a specific treatment, but rather observing and collecting information.

What's involved

Participants will undergo periodic clinical assessments and genetic analyses. The specific number or type of visits and tests is not detailed.

Compensation

Not stated in the trial record.

Follow-up

The primary goals of this study are measured on an ongoing basis, suggesting long-term observation.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.