Emphysema Research Registry and Biosample Repository

This study is creating a research registry and biosample repository for people with emphysema, chronic obstructive pulmonary disease (COPD), or chronic bronchitis, and a comparison group without lung diseases. The goal is to gather information to better understand emphysema and develop new treatments. There are no specific interventions being tested. You can join if you are 21 or older and have a diagnosis of COPD based on clinical history, lung function tests, or X-rays. The study is currently unclear about its status, but it plans to enroll up to 3000 participants.

Study design
This is an observational study aiming to enroll up to 3000 participants. It involves collecting information from people with emphysema and a control group.
What's involved
You would provide basic personal information, answer screening questions, complete two breathing questionnaires, undergo lung function tests, have blood drawn, and have measurements of leg muscle strength and body fat.
Compensation
Not stated in the trial record.
Follow-up
The primary endpoint is to gather information and create a registry, measured indefinitely.

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NCT00307281

Emphysema Research Registry and Biosample Repository

Recruiting
Not specifiedAges 21+Observational
University of Pittsburgh
~3,000 participants
Updated 2025-09-25 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
To gather information and create a research registry of people who have been diagnosed with emphysema and a control cohort of research participants without lung diseases,
Measured over Indefinite
Emphysema
Chronic Obstructive Pulmonary Disease
Chronic Bronchitis
1 sites across 1 states
Pennsylvania1
  • Frank C. Sciurba, MD · PRINCIPAL_INVESTIGATOR · University of Pittsburgh Medical Center

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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

Patients would be required to have COPD based on at least one of the following: clinical history, pulmonary function results, or radiographic results.

Exclusion

none
  • To gather information and create a research registry of people who have been diagnosed with emphysema and a control cohort of research participants without lung diseases,Indefinite

    This research registry will allow us to to advance the understanding of emphysema and to evaluate new therapies for patients with emphysema.