Screening for Eye Disease Research at the National Eye Institute

This study is a screening program by the National Eye Institute (NEI) to find people who might be eligible for other NEI eye research studies. It's for individuals with known eye diseases, those with unusual or undiagnosed eye conditions, or even healthy people who could serve as comparison participants. You won't receive treatment in this study. Instead, NEI doctors will examine you, review your medical and family history, and conduct tests like physical exams, blood tests, and genetic testing to understand your eye condition and see if you qualify for other research. The goal is to identify suitable participants for ongoing NEI studies.

Study design
This is an observational study aiming to enroll up to 10,000 participants. It's designed to screen individuals for eligibility in other NEI research.
What's involved
You would undergo various tests and procedures, including personal and family medical history, physical examination, blood tests (including genetic testing), and other diagnostic procedures to evaluate your eye disease.
Compensation
Not stated in the trial record.
Follow-up
Your eligibility will be determined at the time of screening. The record does not specify follow-up after this initial assessment.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT00655096

Screening for Research Participants

Recruiting
Not specifiedAges 2+Observational
National Eye Institute (NEI)
~10,000 participants
Updated 2026-08-10 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
ascertain eligibility
Measured over At screening
Eye Diseases
1 sites across 1 states
Maryland1
  • Awilda V Holland, R.N. · PRINCIPAL_INVESTIGATOR · National Eye Institute (NEI)

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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

Have a diagnosed ocular disease/disorder; OR
Potentially have an unusual, interesting, or unknown ocular condition that requires the establishment of a diagnosis; OR
Potentially participate as a disease-free control participant in an NEI clinical research study; OR
Are an unaffected first-degree relative of a participant with either a diagnosed or undiagnosed ocular disorder; AND
Have the ability to understand and sign an informed consent OR if they are minor children have a legal parent/guardian with the ability to do the same.
Adults with impaired capacity to consent must have a Legally Authorized Representative (LAR) who is able to provide informed consent.

Exclusion

Are unwilling or unable to cooperate with the study procedures.
Female participants of childbearing potential who are pregnant are not eligible for enrollment.
  • ascertain eligibilityAt screening

    Determine eligibility for additional NEI protocols.