Preterm Lung Patient Registry
This is an observational study called the Preterm Lung Patient Registry. It aims to collect information on people who were born prematurely or had lung disease as newborns, specifically bronchopulmonary dysplasia (BPD). The goal is to better understand the illness, improve care, and ultimately help people live longer and healthier lives. Researchers are looking at factors like genetics and how the disease progresses over time. The main way they will measure success is by looking at lung function throughout a person's life. The study is currently accepting participants who were born prematurely.
- Study design
- This is an observational study designed to gather information from about 1500 participants. It is not testing a specific treatment but rather collecting data to understand chronic lung disease in former preterm infants.
- What's involved
- Not specified in the trial record.
- Compensation
- Not stated in the trial record.
- Follow-up
- Lung function will be measured over a participant's lifetime.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Preterm Lung Patient Registry
At a glance
Conditions
NCT00951366
Where you'd take part
This study runs at 1 site. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.
Boston Children's Hospital
Boston, Massachusettsstudy coordinator listed
Recruiting
Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
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Inclusion
What this trial measures
- Lung functionLifetime
Spirometry