The NARCOMS Registry is an ongoing project that collects health information from a large group of people with multiple sclerosis (MS) or clinically isolated syndrome (CIS). This registry helps researchers understand how MS progresses and how different treatments affect people over time. There isn't a specific drug or intervention being tested; instead, the study observes real-world disease and treatment patterns. You can join if you are at least 18 years old and have been diagnosed with MS or CIS. The main goal is to track how your disease changes over many years, up to 15 years. The study is currently active and looking for participants.

Study design

This is an observational study, meaning it collects information without testing a specific intervention. It aims to enroll 50,000 participants.

What's involved

You will complete an enrollment survey online or by mail, and then update your information twice a year. Each update takes less than 20 minutes.

Compensation

There is no cost to participate.

Follow-up

Your disease progression will be followed for up to 15 years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.