Observational Study of Diffuse Intrinsic Pontine Glioma and Brainstem Glioma

This study is collecting samples from children and young adults (up to 21 years old) with diffuse intrinsic pontine glioma (DIPG) or other brainstem gliomas. The goal is to understand the molecular changes in these tumors by studying RNA and proteins in tumor tissue, normal brain tissue, and spinal fluid. Researchers hope to identify specific markers that can lead to new and more effective treatments. This is an observational study, meaning there are no specific interventions or treatments being tested. The study aims to enroll 100 participants, but its current status is unclear.

Study design
This is an observational study designed to collect samples from 100 participants. It is not testing any specific interventions.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
The primary endpoints, such as analyzing gene expression and protein profiles, will be measured at 5 years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT01106794

Molecular Analysis of Samples From Patients With Diffuse Intrinsic Pontine Glioma and Brainstem Glioma

Recruiting
Not specifiedUp to 21Observational
Children's National Research Institute
~100 participants
Updated 2024-08-20 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Genome-wide expression patterns of RNA in tumor samples, normal brainstem tissue and cerebrospinal fluid using Affymetrix gene expression profiling
Measured over 5 years
+5 more outcomes measured
Diffuse Intrinsic Pontine Glioma
Brainstem Glioma

NCT01106794

Where you'd take part

This study runs at 1 site. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.

  • Children's National Medical Center

    Washington D.C., District of Columbiano site contact published

    Recruiting

Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.

  • Javad Nazarian, PhD · PRINCIPAL_INVESTIGATOR · Children's National Research Institute

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Eligibility criteria

Inclusion

Patients of any age with clinical and radiologic diagnosis of diffuse intrinsic pontine glioma
Patients with other high-grade gliomas originating in the brainstem
Patients with focal gliomas (WHO grade I/II) of the brainstem

Exclusion

Patients with any type of infiltrative low grade (WHO grade I and II) or high grade glioma (WHO grade III and IV) originating outside the brainstem
Patients harboring primary brainstem tumors with other histologic diagnoses (e.g., PNET)
  • Genome-wide expression patterns of RNA in tumor samples, normal brainstem tissue and cerebrospinal fluid using Affymetrix gene expression profiling5 years

    Collected tumor and normal samples will potentially be used for RNA genome-wide expression pattern profiling.

  • Validation of results of the genome-wide analysis5 years

    The molecular analysis done on collected samples will be validated through whole genome sequencing.

  • Proteomic profiling of tumor, normal brainstem tissue and cerebrospinal fluid5 years

    To obtain full characterization of collected samples, proteomic profiling will be done on tumor and normal samples collected.

  • Protein expression patterns as assessed by immunohistochemistry and western blot compared to normal brainstem tissue5 years

    Collected tumor and normal samples will have the immunochemistry and western blot compared to assess protein expression variation.

  • Genome-wide analysis of tumor samples and normal brainstem tissue5 years

    To obtain full characterization of collected samples, whole genome sequencing will be done on tumor and normal samples collected.

  • In vitro and in vivo molecular analysis of collected samples5 years

    Collected samples will potentially be used for in vitro analysis and generation of animal models of this tumor.