This study is creating a national registry for people with cutaneous lupus erythematosus (skin manifestations of lupus) to better understand its causes, diagnosis, and management. Researchers will collect information from your medical history, clinical data, lab results, and blood and skin samples. You'll complete questionnaires about your lupus, medical history, family history, quality of life, and sun protection. You may also be asked to donate blood and skin samples and have digital photos taken of affected areas. This study does not involve new treatments; it's focused on gathering information. The goal is to understand genes and proteins related to cutaneous lupus over five years.

Study design

This is an observational study aiming to enroll 1000 participants. It is not testing a specific treatment.

What's involved

You will complete questionnaires, potentially donate blood and skin samples, and have digital photography. You will be followed annually for five years.

Compensation

Not stated in the trial record.

Follow-up

You will be followed on an annual basis for five years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.