This observational study, called the Scleroderma Registry, aims to better understand scleroderma, a complex rheumatic disease. Researchers are collecting information and optional blood samples from adults (18 years or older) who have scleroderma. The goal is to learn more about the disease's features, biology, and genetics, which could eventually lead to new treatments. You would complete two health questionnaires and may be asked to donate blood for research. The study will track changes in your skin thickness (Modified Rodnan Skin Score) during your regular doctor visits for up to five years. This research helps generate new knowledge to improve care for people with scleroderma.

Study design

This is an observational study, meaning researchers will collect information without giving any specific interventions. It plans to enroll 300 participants.

What's involved

You would complete two health questionnaires and are encouraged to donate research blood. Follow-up data will be collected during your regular doctor visits.

Compensation

Not stated in the trial record.

Follow-up

Your skin thickness will be measured at baseline and follow-up visits during regularly scheduled appointments for up to 5 years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.