Proton and Photon Consortium Registry (PPCR) for Pediatric Radiation Therapy

This study, called the Proton and Photon Consortium Registry (PPCR), is collecting information from children (up to 21 years old) who have received radiation therapy for cancer. Doctors want to understand how different types of radiation, like Proton Beam Radiation Therapy (PBRT), compare in terms of benefits and side effects over time. While PBRT is thought to be better at targeting cancer and causing fewer long-term side effects, there isn't much published data to prove this. By gathering information from many patients, this registry aims to help researchers learn more about radiation therapy and improve treatments for children with cancer. You can join if you are under 22 and have received radiation therapy at one of the participating centers, regardless of other treatments.

Study design
This is an observational study, meaning researchers will collect information about your treatment and health over time. The study plans to include up to 5000 participants.
What's involved
You will receive your cancer treatment, evaluations, and follow-up care as determined by your doctor. A study coordinator will review your medical records annually to update your status in the database.
Compensation
Not stated in the trial record.
Follow-up
The study aims to establish the registry, measured at 2 years, and will collect treatment outcomes, side effects, and cancer progression as information becomes available.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT01696721

Proton and Photon Consortium Registry (PPCR): A Multi Center Registry of Pediatric Patients Treated With Radiation Therapy

Recruiting
Not specifiedUp to 21Observational
Massachusetts General Hospital
~5,000 participants
Updated 2026-05-14 on ClinicalTrials.gov
What's tested:No intervention

At a glance

Recruiting sites
25 of 26 listed sites are recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Establish Registry
Measured over 2 years
Pediatric Patients Treated With Radiation Therapy
26 sites across 20 states
California3
New York2
Ohio2
Oklahoma2
Texas2
Florida1
Georgia1
Illinois1
  • Torunn I Yock, MD · PRINCIPAL_INVESTIGATOR · Massachusetts General Hospital

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  • Establish Registry2 years

    Establish a registry of pediatric patients treated with proton radiation therapy in the United States