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Bicuspid Aortic Valve (BAV) Registry

This study is a registry for people with bicuspid aortic valve (BAV) disease. BAV is a heart condition where the aortic valve, which controls blood flow from the heart, has two flaps instead of the usual three. The registry aims to collect information about people with BAV to better understand how the condition affects them over time. Researchers will look at how the aorta (the body's main artery) changes, how people respond to different treatments, and if there are genetic factors involved. You can join if you are over 18 and have BAV, a family history of BAV, or an unexplained ascending aortic aneurysm. The main goal is to understand BAV patients over 30 years. The current status of this registry is unclear.

Study design
This is an observational study, meaning researchers will collect information without providing any specific treatments. It plans to include up to 5000 participants.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
Participants will be characterized over 30 years.

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NCT01756222

Bicuspid Aortic Valve (BAV) Registry

Recruiting
Not specifiedAges 18+Observational
University of Michigan
~5,000 participants
Updated 2025-01-16 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Characterizing patients with bicuspid aortic valve disease
Measured over 30 years

Conditions

Bicuspid Aortic Valve

Explore related trials

Aneurysm of ascending aortaBicuspid Aortic Valve

Where it's being run

1 sites across 1 states
Michigan1

Study leadership

  • Bo Yang, MD · PRINCIPAL_INVESTIGATOR · University of Michigan

Who to contact

Bo Yang, MD, PhD
[email protected]
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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

Any patient over the age of 18 who is able/willing to give informed consent with the diagnosis of bicuspid aortic valve disease, a family history of this disease or an ascending aortic aneurysm that is idiopathic can be included in the registry.

Exclusion

Patients unable or unwilling to give informed consent.

What this trial measures

  • Characterizing patients with bicuspid aortic valve disease30 years

    Identifying patients with bicuspid aortic valve disease, assessing the effect of medical intervention.