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Understanding Factors for Better Quality of Life in Parkinsonism

This observational study, called Modifiable Variables in Parkinsonism (MVP), aims to understand what practices, beliefs, and therapies are linked to a better quality of life and fewer symptoms for people with Parkinson's disease and similar conditions like Multiple System Atrophy (MSA) or Progressive Supranuclear Palsy (PSP). We are not testing a new medicine or treatment. Instead, we are looking at how different aspects of your life, including diet and lifestyle, might affect your experience with these conditions. Success for this study means identifying patterns in medication, diet, and lifestyle that are associated with a high quality of life and slower disease progression. The current recruitment status is unclear.

Study design
This is an observational study with a planned enrollment of 2000 participants. It is not specified if it is randomized or blinded.
What's involved
You would complete online surveys about your health, experiences, and food intake every six months for five years. Each survey session is expected to take about an hour to an hour and a half.
Compensation
Not stated in the trial record.
Follow-up
Participants will be followed for five years, with primary endpoints measured at the five-year mark.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT02194816

Modifiable Variables in Parkinsonism (MVP)

Recruiting
Not specifiedAges 19+Observational
Bastyr University
~2,000 participants
Updated 2022-03-25 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
CAM Care for PD survey
Measured over 5 years
+2 more outcomes measured

Conditions

Parkinson's Disease
Parkinsonism
MSA - Multiple System Atrophy
Progressive Supranuclear Palsy
Shy-Drager Syndrome
Corticobasal Degeneration
Dementia With Lewy Bodies
Pick Disease
Olivopontocerebellar Atrophies

Explore related trials

Corticobasal DegenerationLewy Body DementiaMultiple System AtrophyParkinson DiseaseParkinsonismProgressive Supranuclear Palsy

Where it's being run

1 sites across 1 states
Washington1

Study leadership

  • Laurie K Mischley, ND, PhD, MPH · PRINCIPAL_INVESTIGATOR · Bastyr University

Who to contact

Research Assistant
[email protected]
425-602-3306
Email the study team

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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

Parkinson's disease (PD)
Parkinsonism
Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies)
Must have online access, an email address, basic computer literacy
Must be willing to complete online surveys every 6 months for 5 years

Exclusion

Inability to read/write English
Inability or unwillingness to complete surveys every six (6) months (\~90 min)

What this trial measures

  • CAM Care for PD survey5 years

    This survey has been developed to identify the complementary and alternative therapies most commonly used by individuals with PD. Results will be reported with descriptive statistics.

  • PROMIS: Global Health5 years

    This outcome measure will be used to assess general health and well-being in the cohort.

  • Patient-Reported Outcomes in PD (PRO-PD)5 years

    This outcome measure is a series of 33 slider bars, developed for this study, to evaluate the individual's perception of symptom severity. The cumulative score for all 33 listed symptoms will be reported as the PRO-PD score.