Cancer Experience Registry for Patients and Caregivers
This is an observational study called the Cancer Experience Registry. It's designed to understand the experiences of people affected by cancer, including patients and their caregivers. There are no specific interventions (like new medications) being tested; instead, participants will complete online surveys. The main goal is to measure your self-reported quality of life, which will be assessed at 7 days. You can join if you are 18 or older, live in the US or Canada, can read English, and have either been diagnosed with cancer or are a caregiver for someone with cancer. The study aims to enroll 15,000 people, but its current recruitment status is unclear.
- Study design
- This is an observational study, meaning it collects information without testing a specific treatment. It plans to include up to 15,000 participants.
- What's involved
- Participants will complete online surveys. The time commitment for these surveys is not specified.
- Compensation
- Not stated in the trial record.
- Follow-up
- Your quality of life will be measured at 7 days after completing the surveys.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Cancer Experience Registry (CER) for Cancer Patients and Caregivers
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Erica E. Fortune, PhD · PRINCIPAL_INVESTIGATOR · Cancer Support Community
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
Do you actually qualify for this trial?
Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.
Inclusion
Exclusion
What this trial measures
- Self-reported quality of life measures7 days
Participant self-reported symptoms and functioning will be measured using the Patient-Reported Outcomes Measurement Information System-Preference Score (PROMIS-Pr). Five domains assess symptoms with higher scores corresponding to worse symptomology (Depression; Anxiety; Pain Interference; Fatigue; Sleep Disturbance) and three assess function with lower scores corresponding to worse functioning (Physical Function; Ability to Participate in Social Roles and Activities; Cognitive Function). Participants rate each item with reference to the past seven days; function scales have no timeframe specified. Scale scores are converted to standardized T scores (mean = 50, SD = 10); normative reference groups are the U.S. general population, except Sleep Disturbance, where comparisons are to a mix of the U.S. population and people with chronic illness.