Hairy Cell Leukemia Patient Data Registry
This study is creating a registry, which is a collection of de-identified (anonymous) patient information, for people with hairy cell leukemia (HCL) or its variant. The goal is to help researchers better understand HCL, find the most effective treatments, discover new complications, and design future studies for new therapies. This registry will collect information about your symptoms, how your disease progresses, complications from the disease and its treatment, and other important details over a long period of time. This is an observational study, meaning researchers will collect information without giving you any specific interventions or treatments as part of the study.
- Study design
- This is an observational study that aims to collect data from up to 5000 participants.
- What's involved
- Not specified in the trial record.
- Compensation
- Not stated in the trial record.
- Follow-up
- Your information will be collected and followed for up to 25 years.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Hairy Cell Leukemia Patient Data Registry
At a glance
Conditions
Where it's being run
8 sites across 7 statesStudy leadership
- Michael Grever, MD · PRINCIPAL_INVESTIGATOR · The Ohio State University Comprehensive Cancer Center
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
What this trial measures
- Surveillanceup to 25 years
Establish a database of Hairy Cell Leukemia patients diagnosed or living in US to track Hairy Cell Leukemia disease course, patient reported outcomes, morbidity, and patient survival.