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Vasculitis Pregnancy Registry

This study, called the Vasculitis Pregnancy Registry, wants to understand the experiences of women with vasculitis (inflammation of blood vessels) who become pregnant. If you are a woman between 18 and 50 years old with certain types of vasculitis, such as Behcet's disease or CNS vasculitis (central nervous system vasculitis), you may be able to participate. The study involves completing several online questionnaires during your pregnancy and after delivery. The main goal is to learn about unique pregnancy characteristics and outcomes for women with vasculitis. The study is currently unclear on its recruitment status.

Study design
This is an observational study with a planned enrollment of 100 women. It is not a randomized or blinded study.
What's involved
You would complete online questionnaires at the start of the study, during your second and third trimesters, and after delivery. Each survey is estimated to take about 20 minutes.
Compensation
Not stated in the trial record.
Follow-up
The primary outcome, unique pregnancy characteristics, will be measured at four years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT02593565

Vasculitis Pregnancy Registry

Recruiting
Not specifiedAges 18–50Observational
University of Pennsylvania
~100 participants
Updated 2026-01-23 on ClinicalTrials.gov
What's tested:Online questionnaires

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Unique pregnancy characteristics among women with vasculitis.
Measured over Four years

Conditions

Vasculitis
Behcet's Disease
CNS Vasculitis
Cryoglobulinemic Vasculitis
Eosinophilic Granulomatosis With Polyangiitis (EGPA)
Churg-Strauss Syndrome (CSS)
Granulomatosis With Polyangiitis (GPA)
Wegener's Granulomatosis
IgA Vasculitis
Henoch-Schoenlein Purpura (HSP)
Microscopic Polyangiitis (MPA)
Polyarteritis Nodosa (PAN)
Takayasu Arteritis (TAK)
Urticarial Vasculitis
Systemic Vasculitis

Explore related trials

Behcet SyndromeCentral Nervous System VasculitisCryoglobulinemic vasculitisEosinophilic Granulomatosis with PolyangiitisGiant Cell ArteritisGranulomatosis with PolyangiitisHenoch-Schönlein PurpuraMicroscopic PolyarteritisPolyarteritis NodosaTakayasu ArteritisUrticarial vasculitis

Where it's being run

1 sites across 1 states
Florida1

Study leadership

  • Megan Clowse, MD, MPH · STUDY_CHAIR · Duke University
  • Peter A Merkel, MD, MPH · STUDY_CHAIR · University of Pennsylvania

Who to contact

Christine Yeung
[email protected]
Email the study team

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Eligibility criteria

Inclusion

Behçet's disease;
Central nervous system (CNS) vasculitis;
Cryoglobulinemic vasculitis (Cryoglobulinemia);
Eosinophilic granulomatosis with polyangiitis (also called Churg-Strauss Syndrome);
Giant Cell (Temporal) Arteritis (GCA);
Granulomatosis with polyangiitis (also called Wegener's);
IgA vasculitis (Henoch-Schoenlein purpura);
Microscopic polyangiitis (MPA);
Polyarteritis nodosa (PAN);
Takayasu's arteritis (TAK);
Urticarial vasculitis;
Other/Suspected Diagnosis. 2. Women must be pregnant (self-report) at the time of enrollment into the registry.

What this trial measures

  • Unique pregnancy characteristics among women with vasculitis.Four years

    To understand pregnancy characteristics and outcomes among women with vasculitis using patient-reported questionnaires in each trimester.