Bone and Soft Tissue Tumor Registry
This study is creating a registry to collect information about people with bone and soft tissue tumors. The goal is to gather high-quality clinical data to help researchers better understand these rare diseases. By collecting this information, researchers hope to identify features that predict how these tumors will progress or respond to treatment. You may be able to join if you are 18 or older and have a diagnosis or presumed diagnosis of a bone or soft tissue tumor. The study will look at how long people live after their diagnosis (Overall Survival) over 5 years.
- Study design
- This is an observational study, meaning researchers will collect information without giving any specific treatments. It plans to include about 1500 participants.
- What's involved
- You would complete quality of life questionnaires and your medical records would be reviewed. You may also be asked to provide blood samples for up to 2 years.
- Compensation
- Not stated in the trial record.
- Follow-up
- The study will measure Overall Survival at 5 years, indicating a follow-up period of at least that long.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
An Electronic Health Record (EHR)-Based Comprehensive Bone and Soft Tissue Tumor Registry
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- David A Liebner, MD · PRINCIPAL_INVESTIGATOR · Ohio State University
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
Do you actually qualify for this trial?
Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.
Inclusion
Exclusion
What this trial measures
- Overall Survival5 Years