COPD Patient-Powered Research Network
This is an observational study called the COPD Patient-Powered Research Network. It's a patient registry aiming to gather health information from 75,000 or more people with Chronic Obstructive Pulmonary Disorder (COPD), or those at risk. You would share your health information over several years by completing surveys online. The goal is to speed up research to find better treatments and a cure for COPD. To join, you must be 18 or older and have a COPD diagnosis, be a current or former smoker, have a family history of respiratory disease, or have symptoms of respiratory disease. You must also be able to speak English. The study will measure your quality of life, COPD symptoms, and breathing difficulties over 15 years.
- Study design
- This is an observational study that aims to enroll 75,000 or more participants. It is a patient research registry.
- What's involved
- You would enroll electronically and complete surveys online. You may also be contacted about other studies you qualify for.
- Compensation
- Not stated in the trial record.
- Follow-up
- Participants will be followed for 15 years to measure their quality of life, COPD symptoms, and breathing difficulties.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
COPD Patient-Powered Research Network
At a glance
Conditions
Where it's being run
1 sites across 1 statesWho to contact
Opens a ready-to-send draft in your own email app — review before sending.
Do you actually qualify for this trial?
Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.
Inclusion
Exclusion
What this trial measures
- Patient Reported Outcome Measurement Information System-29 (PROMIS-29)15 years
- COPD Assessment Test (CAT)15 years
- Modified Medical Research Council (MMRC) Dyspnea Scale15 years
- Charlson Comorbidity Index (CCI)15 years