COPD Patient-Powered Research Network

This is an observational study called the COPD Patient-Powered Research Network. It's a patient registry aiming to gather health information from 75,000 or more people with Chronic Obstructive Pulmonary Disorder (COPD), or those at risk. You would share your health information over several years by completing surveys online. The goal is to speed up research to find better treatments and a cure for COPD. To join, you must be 18 or older and have a COPD diagnosis, be a current or former smoker, have a family history of respiratory disease, or have symptoms of respiratory disease. You must also be able to speak English. The study will measure your quality of life, COPD symptoms, and breathing difficulties over 15 years.

Study design
This is an observational study that aims to enroll 75,000 or more participants. It is a patient research registry.
What's involved
You would enroll electronically and complete surveys online. You may also be contacted about other studies you qualify for.
Compensation
Not stated in the trial record.
Follow-up
Participants will be followed for 15 years to measure their quality of life, COPD symptoms, and breathing difficulties.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT02803242

COPD Patient-Powered Research Network

Recruiting
Not specifiedAges 18+Observational
COPD Foundation
~75,000 participants
Updated 2022-03-10 on ClinicalTrials.gov
What's tested:Patient Reported Outcomes

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Patient Reported Outcome Measurement Information System-29 (PROMIS-29)
Measured over 15 years
+3 more outcomes measured
Chronic Obstructive Pulmonary Disorder
Chronic Obstructive Lung Disease
Emphysema
Chronic Bronchitis
1 sites across 1 states
District of Columbia1

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Do you actually qualify for this trial?

Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.

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Eligibility criteria

Inclusion

18 years or older that says yes to one of the following:
COPD diagnosis
Current or former smoker
Family history of respiratory disease
Symptomatic of respiratory disease

Exclusion

Non-English speaking
  • Patient Reported Outcome Measurement Information System-29 (PROMIS-29)15 years
  • COPD Assessment Test (CAT)15 years
  • Modified Medical Research Council (MMRC) Dyspnea Scale15 years
  • Charlson Comorbidity Index (CCI)15 years