The National Eye Institute (NEI) is conducting an observational study to better understand eye diseases and how they are inherited. This study aims to collect information and samples from people with diagnosed, undiagnosed, or suspected eye diseases to learn more about their natural course and how they respond to standard treatments. There are no specific interventions being tested; instead, researchers will observe and collect data during your regular clinical care. The main goal is to gather information that can help future research. You may be eligible if you are between 1 month and 100 years old, have an eye disease, and can provide consent or have a guardian do so. The study plans to enroll up to 1000 participants, but the current recruitment status is unclear.

Study design

This is an observational study with a planned enrollment of 1000 participants. It is not testing a specific drug or intervention, but rather collecting data during standard care.

What's involved

You would have 1-12 visits per year for up to 5 years, with each visit lasting about 4 hours. These visits could include medical and family history, physical and eye exams, and eye photography, possibly with contact lenses or goggles.

Compensation

Not stated in the trial record.

Follow-up

The clinical assessments of enrolled participants will be used to measure the response to standard treatment on an ongoing basis.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.