Pancreatic Cancer Registry for Family History Research

This study is an observational registry aiming to understand the causes of pancreatic cancer, especially why it sometimes runs in families. Researchers are looking for both genetic (inherited) and non-genetic factors. They are particularly interested in identifying genes like ATM and PALB2 that might increase the risk of pancreatic cancer. You can join if you are 18 or older and have a personal or family history of pancreatic tumors. The study plans to enroll 12,000 people and will follow participants for 35 years to see if pancreatic cancer develops.

Study design
This is an observational study, meaning researchers will collect information without giving any specific treatments. It plans to enroll 12,000 participants.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
Participants will be followed for 35 years to observe the development of pancreatic cancer.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT02886247

Pancreatic Cancer Registry: For Any Person With a Personal or Family History

Recruiting
Not specifiedAges 18+Observational
Johns Hopkins University
~12,000 participants
Updated 2026-08-05 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
pancreatic cancer
Measured over 35 years
Pancreatic Cancer, ATM, BRCA, Hereditary Cancer
1 sites across 1 states
Maryland1
  • Alison Klein, PhD, MHS · PRINCIPAL_INVESTIGATOR · Johns Hopkins University

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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

personal or family history of pancreas tumors

Exclusion

none
  • pancreatic cancer35 years