Observational Study of Dermatomyositis Using CDASI

This is an observational study at the University of Pennsylvania for people with dermatomyositis (a rare inflammatory disease that affects skin and muscles). Researchers are using a database to better understand the disease, including how it affects your body, your mental well-being, and your quality of life. They are specifically looking at how your skin symptoms respond to treatment over about one year, using a tool called the Cutaneous Dermatomyositis Disease Area and Severity Index (CDASI). This study aims to gather valuable information from 300 participants to help improve care for dermatomyositis patients.

Study design
This is an observational study, meaning researchers will collect information without giving any specific treatments. It involves about 300 participants.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
Your skin symptoms will be measured through study completion, which is an average of one year.

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NCT02945345

Clinical Responsiveness of Dermatomyositis Using Cutaneous Dermatomyositis Disease Area and Severity Index (CDASI)

Recruiting
Not specifiedAges 18+Observational
University of Pennsylvania
~300 participants
Updated 2026-03-30 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Cutaneous Dermatomyositis Disease Area and Severity Index
Measured over through study completion, an average of 1 year
Dermatomyositis
1 sites across 1 states
Pennsylvania1

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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

Gender/Age: Males or females above 18 years old
Diagnosis: Cutaneous Dermatomyositis
Subjects able to give informed consent

Exclusion

Subjects without cutaneous DM
Penn employees
Penn students
Cognitively impaired persons
  • Cutaneous Dermatomyositis Disease Area and Severity Indexthrough study completion, an average of 1 year

    Disease severity tool