Amish/Mennonite Research Contact Registry

This study is creating a registry, which is a list of people, from the Amish and Mennonite communities in western Pennsylvania who are interested in participating in future medical research. The goal is to make it easier to find individuals who might be a good fit for new studies based on their health history. This registry will help researchers learn more about health conditions that affect these communities. You can join if you are an Amish or Mennonite adult (18 or older), or a child with parent permission. The registry aims to gather 1000 participants and is currently ongoing.

Study design
This is an observational study, meaning researchers will collect information without giving any specific treatments. It aims to enroll 1000 participants.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
This registry is intended to be an ongoing resource for recruitment into future research studies and will be maintained for up to 14 years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT02990572

Amish/Mennonite Research Contact Registry

Recruiting
Not specifiedAll AgesObservational
University of Pittsburgh
~1,000 participants
Updated 2026-01-29 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Accumulation and clinical definition of a patient population who are willing to participate in future research studies for which they are eligible.
Measured over This registry is intended to be an ongoing resource for recruitment into future research studies and will be maintained up to 14 years.
All
1 sites across 1 states
Pennsylvania1
  • Lina Ghaloul Gonzalez, MD · PRINCIPAL_INVESTIGATOR · University of Pittsburgh
Jerome Doerger, BFA, MS, MPH, LCGC
Email the study team

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Do you actually qualify for this trial?

Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.

Check eligibility for this trial ~2 min · HIPAA-protected · delete anytime
Eligibility criteria

Inclusion

Amish and Mennonite men and women age 18 or older
Amish and Mennonite children with the permission of a parent

Exclusion

Amish and Mennonite men and woman age 18 or older who do not speak English
Those who are not Amish or Mennonite
  • Accumulation and clinical definition of a patient population who are willing to participate in future research studies for which they are eligible.This registry is intended to be an ongoing resource for recruitment into future research studies and will be maintained up to 14 years.

    This research registry is intended to allow for identification of patients from the Plain Communities who are willing to participate in medical research. Eligibility for each future study will likely cary and patients will be selected and contacted with their permission, by dint of having consented to this registry, about the option of participating in a new research study.