Partners Calciphylaxis Biobank

This study is creating a collection of samples, called a biorepository, to help us better understand calciphylaxis. Calciphylaxis is a rare and serious condition where blood vessels in the skin harden. Currently, there isn't an effective treatment because we don't fully understand what causes it or the best ways to treat it. This biorepository aims to fill these knowledge gaps by collecting samples from patients. Researchers hope to learn more about the disease and identify factors that might improve calciphylaxis skin lesions. You may be able to join if you are 18 or older and have skin lesions consistent with calciphylaxis, as determined by your doctor. The study is looking to enroll 300 participants.

Study design
This is an observational study, meaning researchers will collect information and samples without giving any specific treatments. It aims to enroll 300 participants.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
The study will look for improvement in calciphylaxis skin lesions at 6 months.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT03032835

Partners Calciphylaxis Biobank

Recruiting
Not specifiedAges 18+Observational
Massachusetts General Hospital
~300 participants
Updated 2024-11-19 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Number of patients with improvement in calciphylaxis skin lesions
Measured over 6 months
Calciphylaxis
Calcific Uremic Arteriolopathy
End Stage Renal Disease
Chronic Kidney Diseases
1 sites across 1 states
Massachusetts1
  • Sagar U Nigwekar, MD, MMSc · PRINCIPAL_INVESTIGATOR · Massachusetts General Hospital

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  • Number of patients with improvement in calciphylaxis skin lesions6 months

    Skin lesions will be assessed by investigators at baseline (entry into study) and at 6 months to determine whether there is improvement. The investigators will determine clinical, laboratory and genetic predictors of this outcome in calciphylaxis patients.