Partners Calciphylaxis Biobank
This study is creating a collection of samples, called a biorepository, to help us better understand calciphylaxis. Calciphylaxis is a rare and serious condition where blood vessels in the skin harden. Currently, there isn't an effective treatment because we don't fully understand what causes it or the best ways to treat it. This biorepository aims to fill these knowledge gaps by collecting samples from patients. Researchers hope to learn more about the disease and identify factors that might improve calciphylaxis skin lesions. You may be able to join if you are 18 or older and have skin lesions consistent with calciphylaxis, as determined by your doctor. The study is looking to enroll 300 participants.
- Study design
- This is an observational study, meaning researchers will collect information and samples without giving any specific treatments. It aims to enroll 300 participants.
- What's involved
- Not specified in the trial record.
- Compensation
- Not stated in the trial record.
- Follow-up
- The study will look for improvement in calciphylaxis skin lesions at 6 months.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Partners Calciphylaxis Biobank
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Sagar U Nigwekar, MD, MMSc · PRINCIPAL_INVESTIGATOR · Massachusetts General Hospital
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
What this trial measures
- Number of patients with improvement in calciphylaxis skin lesions6 months
Skin lesions will be assessed by investigators at baseline (entry into study) and at 6 months to determine whether there is improvement. The investigators will determine clinical, laboratory and genetic predictors of this outcome in calciphylaxis patients.