This study, called the Mayo AVC Registry and Biobank, is looking to understand more about Arrhythmogenic Ventricular Cardiomyopathy (AVC), a genetic heart condition that can lead to heart failure and sudden cardiac arrest. Researchers want to collect information from up to 1000 people with a history of AVC or sudden cardiac death that might be due to AVC. This includes patients who survived a sudden cardiac arrest not caused by a heart attack, those who experienced sudden cardiac death, or those with suspected cardiomyopathy after events like seizures or syncope. Family members of people diagnosed with certain cardiomyopathies, including AVC, are also invited to participate. The goal is to connect genetic information (genotype) with how the disease shows up (phenotype) over 3 to 6 years to help improve diagnosis and screening.

Study design

This is an observational study, meaning researchers will collect information without providing any specific interventions. It aims to enroll up to 1000 participants.

What's involved

Not specified in the trial record.

Compensation

Not stated in the trial record.

Follow-up

Participants will be followed for genotyping at 3 years and for correlating genotype with phenotype at 3-6 years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.