Registry for Malignant Peripheral Nerve Sheath Tumors
This study is creating a worldwide database to better understand Malignant Peripheral Nerve Sheath Tumors (MPNSTs), especially those linked to Neurofibromatosis type 1 (NF1). Researchers are collecting information like tissue characteristics (histologic), immune markers (immunohistochemical), and genetic details (molecular) from patients with MPNSTs. They hope to find new patterns in how these tumors develop and behave. You can join if you have been diagnosed with an MPNST and agree to share your information. The study aims to collect data from 1050 participants over 10 years to learn more about MPNSTs.
- Study design
- This is an observational study, meaning researchers are collecting information without giving any specific treatments. It aims to enroll 1050 participants.
- What's involved
- Not specified in the trial record.
- Compensation
- Not stated in the trial record.
- Follow-up
- The study will collect information on your tumor's characteristics for up to 10 years.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Multi-Institutional Registry for Malignant Peripheral Nerve Sheath Tumors
At a glance
Conditions
NCT03141021
Where you'd take part
This study runs at 13 sites. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.
Johns Hopkins
Baltimore, Marylandstudy coordinator listed
Recruiting
Memorial Sloan Kettering Cancer Center
New York, New Yorkstudy coordinator listed
Not yet recruiting
Mount Sinai
Toronto, Ontario, Canadastudy coordinator listed
Recruiting
Nagoya University Hospital
Nagoya, Showa Ward, Japanstudy coordinator listed
Recruiting
National Institutes of Health (NIH)
Bethesda, Marylandstudy coordinator listed
Not yet recruiting
Washington University School of Medicine
St Louis, Missouristudy coordinator listed
Recruiting
Dana Farber Cancer Institute
Boston, Massachusettsno site contact published
Withdrawn
Global Gene Corporation
Mumbai, Indiano site contact published
Completed
Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.
Study leadership
- Angela Hirbe, M.D., Ph.D. · PRINCIPAL_INVESTIGATOR · Washington University School of Medicine
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
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Inclusion
What this trial measures
- Histologic characteristics of malignant peripheral nerve sheath tumor (MPNST)10 years
-The data collected through this registry will be used to analyze previously unanticipated patterns and prognostic clues about MPNST
- Immunohistochemical characteristics of malignant peripheral nerve sheath tumor (MPNST)10 years
-The data collected through this registry will be used to analyze previously unanticipated patterns and prognostic clues about MPNST
- Molecular characteristics of malignant peripheral nerve sheath tumor (MPNST)10 years
-The data collected through this registry will be used to analyze previously unanticipated patterns and prognostic clues about MPNST
- Radiographic characteristics of malignant peripheral nerve sheath tumor (MPNST)10 years
-The data collected through this registry will be used to analyze previously unanticipated patterns and prognostic clues about MPNST
- Treatment given to patients with malignant peripheral nerve sheath tumor (MPNST)10 years
-The data collected through this registry will be used to analyze previously unanticipated patterns and prognostic clues about MPNST
- Future genomic characterization of malignant peripheral nerve sheath tumor (MPNST)10 years
-The data collected through this registry will be used to analyze previously unanticipated patterns and prognostic clues about MPNST