Registry for Adults With Plasma Cell Disorders
This study is creating a registry (a collection of information) for adults with plasma cell disorders (PCDs), which include conditions like multiple myeloma, amyloidosis, and Castleman's disease. The main goal is to gather information about these conditions and how patients are assessed over 10 years. You may be eligible if you are an adult patient with a diagnosed PCD and are receiving care at UNC Cancer Hospitals or affiliated clinics. While there are no specific interventions (treatments) being tested, the study involves completing an assessment at the start and over time, which looks at your functional status, medical conditions, and well-being. There's also an optional blood draw to look at a genetic marker related to aging. This information will help support future research into PCDs.
- Study design
- This is an observational study aiming to enroll 2000 participants to create a registry of patients with plasma cell disorders.
- What's involved
- You would complete an assessment at the beginning of the study and then periodically over time. This assessment covers various aspects of your health and well-being, and your medical records will also be reviewed.
- Compensation
- Not stated in the trial record.
- Follow-up
- The primary goals of the study are measured over 10 years, indicating a long-term follow-up period.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Registry for Adults With Plasma Cell Disorders (PCD's)
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Sascha Tuchman, MD · PRINCIPAL_INVESTIGATOR · UNC Lineberger Comprehensive Cancer Center
Who to contact
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Do you actually qualify for this trial?
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Inclusion
Exclusion
What this trial measures
- Creation of a Registry of Plasma Cell Disorder (PCD) patients10 years
- Completion of baseline and longitudinal assessments in PCD patients10 years