The Donor App for finding living organ donors

This study is testing a web-based tool called The Donor App. This app helps people on the kidney or liver transplant waiting list share their story on social media (like Facebook) to find a living organ donor. The goal is to see if using social media this way helps more people find potential donors and receive a living donor transplant. You can join if you are at least 18 years old and are on a kidney-only or liver-only transplant waiting list. The study aims to enroll 1000 participants, but its current status is unclear.

Study design
This is an interventional study that plans to enroll 1000 participants. It is not specified if it is randomized or blinded.
What's involved
Participants will use The Donor App to create and share their story on social media. The trial record does not specify other procedures or visits.
Compensation
Not stated in the trial record.
Follow-up
The study will track potential donors identified and living donor transplants for up to 5 years.

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NCT03803423

Dissemination of the Donor Application: Utilizing Social Media to Identify Potential Live Organ Donors

Recruiting
NAAges 18+Interventional
Johns Hopkins University
~1,000 participants
Updated 2025-11-10 on ClinicalTrials.gov
What's tested:The Donor App

At a glance

Recruiting sites
1 of 6 listed sites are recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Potential donors identified
Measured over Up to 5 years
+1 more outcome measured
End Stage Renal Disease
End Stage Liver Disease
6 sites across 6 states
California1
Connecticut1
Illinois1
Maine1
Maryland1
Missouri1
  • Andrew Cameron, MD PhD · PRINCIPAL_INVESTIGATOR · Johns Hopkins University

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Eligibility criteria

Inclusion

At least 18 years of age
On the kidney-only or liver-only transplant waiting list at a collaborating center

Exclusion

Younger than 18 years of age
Not on the kidney or liver transplant waiting list
On multiple organ transplant waiting lists
  • Potential donors identifiedUp to 5 years

    Number of potential live donors that come forward to the transplant center on behalf of the participant.

  • Live donor transplantationUp to 5 years

    Number of participants that receive a live donor transplant.