Back to search results

Observational Study for Multiple System Atrophy (MSA) at UT Southwestern

This is an observational study looking at how Multiple System Atrophy (MSA) affects people and how multidisciplinary care (care from a team of different specialists) impacts your quality of life and the burden on your caregivers. You could join if you are 18 or older, have possible or probable MSA, and are a patient at the UT Southwestern MSA clinic, able to attend clinic every four months. The study will measure your quality of life related to MSA over five years to see the impact of this care. The current recruitment status is unclear.

Study design
This is an observational study planning to include 200 participants. It is a prospective cohort study, meaning participants are followed over time.
What's involved
You and your caregivers would attend a multidisciplinary MSA clinic every four months. You would also complete online and paper questionnaires at home or in the clinic.
Compensation
Not stated in the trial record.
Follow-up
You will be contacted for follow-up information for up to five years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT03811808

Multiple System Atrophy Multidisciplinary Clinic

Recruiting
Not specifiedAges 18+Observational
University of Texas Southwestern Medical Center
~200 participants
Updated 2026-05-22 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Multiple System Atrophy-Quality of Life (MSA-QoL)
Measured over at 5 year evaluation

Conditions

Multiple System Atrophy (MSA)

Explore related trials

Multiple System Atrophy

Where it's being run

1 sites across 1 states
Texas1

Study leadership

  • Steven Vernino, M.D. · PRINCIPAL_INVESTIGATOR · University of Texas Southwestern Medical Center

Who to contact

Amy Conger
[email protected]
214-648-0214
Email the study team

Opens a ready-to-send draft in your own email app — review before sending.

Do you actually qualify for this trial?

Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.

Check eligibility for this trial ~2 min · HIPAA-protected · delete anytime
Eligibility criteria

Inclusion

Subject must be a patient in the UT Southwestern MSA clinic and be able to attend the multidisciplinary clinic every 4 months
Patients with possible or probable MSA based on established criteria
Subjects must be 18 years or older

Exclusion

Patients that are unable to give consent
Minor patients (younger than age 18)
Non-English speaking patients
Subjects that are diagnosed with dementia

What this trial measures

  • Multiple System Atrophy-Quality of Life (MSA-QoL)at 5 year evaluation

    The disease burden of MSA and impact of multidisciplinary care on the quality of life of patients as measured by the MSA-Quality of Life (QOL) questionnaire completed every four months by the patients. The scale measures how MSA affects a person's quality of life in day to day activities. The scale ranges from No problem to Extreme Problem. The More Extreme Problem sections selected the more their quality of life is affected by the disease.