Sensory Symptoms in Tourette Syndrome Study
This observational study is looking at how sensory symptoms, or feelings and sensations, change over time in people with Tourette Syndrome. Researchers are not testing a specific drug or intervention. Instead, they want to understand the extent and variety of non-motor features (symptoms not related to movement) of Tourette Syndrome, like premonitory urges (feelings before a tic), sensory experiences, attention issues, obsessive-compulsive tendencies, anxiety, and depression. You can join if you are 18 or older, can complete questionnaires in English, and have a diagnosis of Tourette Syndrome or a chronic tic disorder. The study aims to understand these symptoms by measuring your Sensory Perception Quotient score annually for up to two years.
- Study design
- This is an observational study planning to enroll 214 participants. It will collect information about symptoms and conditions related to Tourette Syndrome over time.
- What's involved
- You would complete a series of questionnaires about your symptoms and quality of life annually. These can be done online or on paper.
- Compensation
- Not stated in the trial record.
- Follow-up
- Participants will be followed for two years, with assessments at enrollment, one year, and two years.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Sensory Symptoms in Tourette Syndrome
At a glance
Conditions
Where it's being run
2 sites across 1 statesStudy leadership
- David A Isaacs, MD, MPH · PRINCIPAL_INVESTIGATOR · Vanderbilt University Medical Center
Who to contact
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Do you actually qualify for this trial?
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Inclusion
Exclusion
What this trial measures
- Baseline Sensory Perception Quotient score, short formInitial assessment at enrollment (time zero)
Validated instrument assessing anomalous sensory experiences. Scale consists of 35 items screening patients for hyper- or hypo-sensitivity to each of the sensory domains (touch, sight, sound, smell, and taste). Each scale item is a statement to which participants provide a ranking: 0 = strongly agree 1. = agree 2. = disagree 3. = strongly disagree The minimum score on the short from is 0; the maximum score is 140. Higher scores indicate more abnormal sensory experiences.
- Change in Sensory Perception Quotient score, short form at 1 year1 year
Validated instrument assessing anomalous sensory experiences. Scale consists of 35 items screening patients for hyper- or hypo-sensitivity to each of the sensory domains (touch, sight, sound, smell, and taste). Each scale item is a statement to which participants provide a ranking: 0 = strongly agree 1. = agree 2. = disagree 3. = strongly disagree The minimum score on the short from is 0; the maximum score is 140. Higher scores indicate more abnormal sensory experiences.
- Change in Sensory Perception Quotient score, short form at 2 years2 years
Validated instrument assessing anomalous sensory experiences. Scale consists of 35 items screening patients for hyper- or hypo-sensitivity to each of the sensory domains (touch, sight, sound, smell, and taste). Each scale item is a statement to which participants provide a ranking: 0 = strongly agree 1. = agree 2. = disagree 3. = strongly disagree The minimum score on the short from is 0; the maximum score is 140. Higher scores indicate more abnormal sensory experiences.