This is a national registry, called PHAR, for people with pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH). It's an observational study, meaning researchers will collect information about how you are evaluated, tested, and treated at participating Pulmonary Hypertension Care Centers. The goal is to understand if people with these conditions are receiving care according to recommended guidelines and to identify factors that might lead to better or worse health outcomes over 10 years. You may be able to join if you have PAH, CTEPH, or pediatric PH due to developmental lung disease, and have had your first outpatient visit at a PH Care Center within the last six months. The study aims to enroll 3000 participants.

Study design

This is an observational study, meaning researchers will collect information about your care without providing any specific interventions. It plans to enroll 3000 participants.

What's involved

Not specified in the trial record.

Compensation

Not stated in the trial record.

Follow-up

Your health outcomes, including survival, will be observed for 10 years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.