Inflammatory Bowel Disease Research Registry

This study is creating a research registry for people with Inflammatory Bowel Disease (IBD), which includes Crohn's disease and ulcerative colitis. Instead of testing a new treatment, this registry collects your existing medical information related to your IBD. The goal is to better understand IBD and factors that affect its course, which could help develop new treatments in the future. You can join if you are 18 or older and receive care at the Center for Inflammatory Bowel Diseases Clinic at UPMC. The study aims to include 5000 patients, and researchers will track the number of patients with IBD over 20 years.

Study design
This is an observational study, meaning researchers will collect information without giving any specific interventions. It aims to include 5000 participants.
What's involved
You would provide written consent to allow your identifiable medical records related to your IBD to be included in the registry.
Compensation
Not stated in the trial record.
Follow-up
The primary goal is to measure the number of patients with IBD at 20 years, indicating a long-term follow-up for the registry data.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT04243525

Inflammatory Bowel Disease (IBD) Research Registry

Recruiting
Not specifiedAges 18+Observational
University of Pittsburgh
~5,000 participants
Updated 2026-08-12 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Number of patients with IBD
Measured over 20 years
Inflamatory Bowel Disease (Crohn's and Ulcerative Colitis)
1 sites across 1 states
Pennsylvania1
  • David Binion, MD · PRINCIPAL_INVESTIGATOR · University of Pittsburgh

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  • Number of patients with IBD20 years