Improving Genetic Counseling for Mothers with BRCA Gene Mutations

This study aims to help mothers who have a BRCA gene mutation (meaning they are at higher risk for hereditary breast cancer) make informed choices about discussing this information with their children. Researchers are testing two approaches: one involves education through a workbook, and the other adds peer support to the workbook education. The goal is to improve how mothers communicate with their children about hereditary breast cancer and to support their emotional well-being. To join, you must be a mother or primary caregiver to an adolescent or young adult (ages 13-24) and be undergoing genetic testing for hereditary breast cancer. The study plans to enroll 200 women, and its current status is unclear.

Study design
This is an interventional study with a planned enrollment of 200 women. It compares two different behavioral interventions.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
Communication will be measured at 1- and 6-months after the interventions.

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NCT04258280

Improving Genetic Counseling for BRCA+ Mothers

Recruiting
NAAges 18+InterventionalSupportive care
Georgetown University
~200 participants
Updated 2024-09-27 on ClinicalTrials.gov
What's tested:Education and counselingEducation

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Communication
Measured over 1- and 6-months post-treatment
Breast Cancer
1 sites across 1 states
District of Columbia1

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Eligibility criteria

Inclusion

Mothers/primary caregivers to adolescents/young adults ages 13-24 years-old.
Participating in genetic testing for hereditary breast cancer.
Adequately speak/read English.
  • Communication1- and 6-months post-treatment

    Parent-child and family communication of hereditary cancer risk.