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UCSF PANC Cyst Registry for Pancreatic Cysts

This study, called the UCSF PANC Cyst Registry, is looking to learn more about pancreatic cysts. These cysts are often found by chance and can sometimes be a sign of pancreatic cancer, but most are harmless. Currently, it's hard for doctors to tell which cysts are dangerous and which are not. This registry aims to collect information from people with pancreatic cysts to better understand how they develop and if they turn into cancer. You would be asked to complete surveys about your health history and your cysts. The study hopes to find ways to better identify cysts that need treatment versus those that don't, ultimately improving care for people with pancreatic cysts. This is an observational study, meaning there are no new treatments being tested.

Study design
This is an observational study, meaning no specific treatments are given. It plans to enroll 4000 participants.
What's involved
You would be asked to complete surveys, which are expected to take about 1-2 hours. These surveys cover your demographics, medical history, and specific questions about your pancreatic cysts.
Compensation
Not stated in the trial record.
Follow-up
The study will track outcomes like cancer and indolency (meaning not harmful) for 1 to 10 years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT04291651

UCSF PANC Cyst Registry

Recruiting
Not specifiedAges 18+Observational
University of California, San Francisco
~4,000 participants
Updated 2025-09-18 on ClinicalTrials.gov
What's tested:Survey

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Cancer
Measured over 1-10 years
+1 more outcome measured

Conditions

Pancreatic Cyst
Pancreatic Neoplasms
Pancreatic Cancer
Pancreatic Diseases
Pancreatic Intraductal Papillary Mucinous Neoplasm
Intraductal Papillary Mucinous Neoplasm
Pancreatic Ductal Adenocarcinoma
Mucinous Cyst

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Intraductal papillary mucinous neoplasmMucinous Cystic NeoplasmPancreatic CystSerous Cystadenoma

Where it's being run

1 sites across 1 states
California1

Study leadership

  • Kimberly S Kirkwood, MD · PRINCIPAL_INVESTIGATOR · University of California, San Francisco
  • Paige M Bracci, PhD, MPH, MS · PRINCIPAL_INVESTIGATOR · University of California, San Francisco

Who to contact

Charysa Santos, BS
[email protected]
415-514-6914
Email the study team

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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

Adults ≥ 30 years of age
Have a radiographic or endoscopic diagnosis of at least one pancreatic cysts regardless of treatment status,
No history of pancreatic cancer,
Can speak and read English,
Have access to a computer or mobile device (\~95% of U.S. population); and
Are able to complete an electronic informed consent.

Exclusion

Patients who don't speak English,
Don't have access to a computer or mobile device; or
Patients who have a cancer diagnosis.

What this trial measures

  • Cancer1-10 years

    While not the primary outcome measure, the development of cancer from a pancreatic cyst is a critically important study endpoint, which the investigators do not expect to be frequent occurrence.

  • Indolency1-10 years

    If a patient with a pancreatic cyst experiences no or minimal change in size, and no development of worrisome or high-risk stigmata (Tanaka 2017), this will be considered to be an indolent lesion. Most patients will fall under this category.