University of Delaware Parkinson's Disease Registry

This is a registry for people with Parkinson's disease at the University of Delaware. It's not a treatment study, but a way to connect people with Parkinson's who are interested in research to future studies. The goal is to make it easier to find participants for various research projects, such as those looking at brain changes, balance, gait, and exercise in Parkinson's disease. To join, you need to be at least 21 years old and have a clinical diagnosis of Parkinson's disease. The registry aims to enroll 1000 participants and is currently unclear on its recruitment status. Success for this registry means building a strong pool of individuals willing to help advance Parkinson's research.

Study design
This is an observational study, meaning it collects information without testing a specific intervention. It aims to enroll 1000 participants.
What's involved
To join, you will provide contact information and some basic health information related to your Parkinson's diagnosis.
Compensation
Not stated in the trial record.
Follow-up
Your Parkinson's Disease Diagnosis will be measured once a year, at the beginning of the year.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT04496973

University of Delaware Parkinson's Disease Registry

Recruiting
Not specifiedAges 21+Observational
University of Delaware
~1,000 participants
Updated 2024-05-16 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Parkinson's Disease Diagnosis
Measured over Once a year, at the beginning of the year
Parkinson Disease

NCT04496973

Where you'd take part

This study runs at 1 site. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.

  • University of Delaware

    Newark, Delawarestudy coordinator listed

    Recruiting

Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.

Opens a ready-to-send draft in your own email app — review before sending.

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Eligibility criteria

Inclusion

Individual 21 years old or older
A clinical diagnosis of Parkinson's disease
Interest in participating in one or more investigator-led research studies at the University of Delaware

Exclusion

Individuals with a clinical diagnosis of parkinsonism that is not considered primary (e.g. vascular parkinsonism) or an atypical parkinsonian syndrome (e.g., progressive supranuclear palsy, multiple system atrophy, corticobasal degeneration etc.)
Clinical diagnosis of dementia
  • Parkinson's Disease DiagnosisOnce a year, at the beginning of the year

    By following up once a year, we will evaluate a participant's medical history to validate a diagnosis of Parkinson's Disease. A confirmed diagnosis of Parkinson's Disease is a criteria for continuing to be a part of the registry.