Telehealth Visits for Advance Directives in High-Grade Glioma
This study is looking at how telehealth visits can help patients newly diagnosed with high-grade glioma (a fast-growing brain tumor) discuss and document their wishes for end-of-life care. These tumors can quickly affect a person's ability to make decisions, so it's important to have these conversations early. The study will use an "Early START" visit, which is a structured telehealth call (over phone or Zoom) with a healthcare provider. Before the visit, you would receive an educational guide and a copy of an advance directive form. The main goal is to see how many patients complete an advance directive between their diagnosis and their third oncology visit (about 4 months). You might be able to join if you are an adult, speak English, and have a new diagnosis of high-grade glioma within the last four months. The study is planning to enroll 50 participants, but its current status is unclear.
- Study design
- This is an interventional study, meaning participants will receive a specific intervention (the Early START telehealth visit). It plans to enroll 50 participants.
- What's involved
- You would participate in an Early START telehealth visit and complete surveys immediately after the visit, 2-4 weeks later, and if applicable, after your death (for caregivers/family).
- Compensation
- Not stated in the trial record.
- Follow-up
- Follow-up surveys are conducted immediately after the visit, 2-4 weeks after the visit, and after subject death.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Telehealth Visits to Discuss Advanced Directives for Patients Newly Diagnosed With High Grade Glioma
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Sara Hardy, MD · PRINCIPAL_INVESTIGATOR · University of Rochester
Who to contact
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Do you actually qualify for this trial?
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Inclusion
Exclusion
What this trial measures
- Advanced Directive Completion RateTime of diagnosis to 3rd oncology visit at an average of 4 months
Percentage of patients who complete an advanced directive by the third oncology visit