Understanding Genetics for Men at Risk for Prostate Cancer
This study aims to understand how African American and rural White men at risk for localized prostate cancer (cancer that hasn't spread) understand genetic information related to their prognosis (the likely course of a disease). The study uses focus groups to explore how men comprehend this genetic technology. Researchers will also look at how an educational video about genetics affects how patients and caregivers talk about genetic information. The goal is to make sure that new genetic information helps all men with prostate cancer, especially those who might face health disparities. This study is currently unclear on its recruitment status and plans to enroll 90 participants.
- Study design
- This is an interventional study that will enroll 90 participants. It uses focus group analyses to understand genetic literacy.
- What's involved
- You would participate in focus group discussions. Your genetic literacy will be measured at baseline, before an intervention, and immediately after the intervention.
- Compensation
- Not stated in the trial record.
- Follow-up
- Genetic literacy is measured at baseline, pre-intervention, and immediately after the intervention. No further follow-up is specified.
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Understanding of Genetics by Men at Risk for Prostate Cancer
At a glance
Conditions
Where it's being run
3 sites across 3 statesStudy leadership
- Ewan K Cobran, PhD · PRINCIPAL_INVESTIGATOR · Mayo Clinic
Who to contact
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Do you actually qualify for this trial?
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Inclusion
What this trial measures
- Estimate Genetic LiteracyBaseline
The Rapid Estimate of Adult Literacy in Genetic - Short Form: An 8-item measure to asses adult literacy in genetics will be used.
- Estimate Genetic LiteracyPre-intervention
The Rapid Estimate of Adult Literacy in Genetic - Short Form: An 8-item measure to asses adult literacy in genetics will be used.
- Estimate Genetic LiteracyImmediately after the intervention
The Rapid Estimate of Adult Literacy in Genetic - Short Form: An 8-item measure to asses adult literacy in genetics will be used.
- Prostate Cancer Genetic UnderstandingBaseline
The Prostate Cancer Genetic Literacy Application (PCGLA) Educational Video, which was developed for this research, will be used as the study educational intervention. Prostate Cancer Genetic understanding will be assess with an 18-item knowledge prostate cancer genetic survey. The items are True or False.
- Focus Group DiscussionBaseline
A semi-structured focus group discussion about the Prostate Cancer Genetic Literacy Application (PCGLA) educational video.
- Focus Group DiscussionImmediately after the intervention
A semi-structured focus group discussion about the Prostate Cancer Genetic Literacy Application (PCGLA) educational video.