COVID-19's Impact on Young Adult Cancer Patients and Survivors
This observational study is looking at how the COVID-19 pandemic has affected adolescent and young adult (AYA) cancer patients and survivors. Researchers want to understand the psychological (mental and emotional), financial, physical, and social impacts of the pandemic on this group. You may be able to join if you were diagnosed with cancer between ages 15 and 39, received treatment at MD Anderson Cancer Center, and are currently between 18 and 39 years old. The study aims to measure COVID-19 specific psychological stress over 12 months to help develop better support for AYA cancer patients and survivors. The current recruitment status is unclear.
- Study design
- This is an observational study with a planned enrollment of 600 participants. It is not testing a new treatment, but rather observing the effects of the pandemic.
- What's involved
- You would complete surveys and participate in quality-of-life assessments. These assessments will occur at baseline, 6 months, and 12 months.
- Compensation
- Not stated in the trial record.
- Follow-up
- Your psychological stress related to COVID-19 will be measured at baseline, 6 months, and 12 months.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
The Effect of COVID-19 Pandemic on Adolescent and Young Adult Cancer Patients and Survivors
At a glance
Conditions
NCT04551378
Where you'd take part
This study runs at 1 site. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.
M D Anderson Cancer Center
Houston, Texasstudy coordinator listed
Recruiting
Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.
Study leadership
- Michael E Roth, MD · PRINCIPAL_INVESTIGATOR · M.D. Anderson Cancer Center
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
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Inclusion
Exclusion
What this trial measures
- Coronavirus disease 2019 (COVID-19) specific psychological stressAt baseline, 6 months, and 12 months
Assessed per responses to the 12 questions pertaining to COVID-19 specific psychological stress within the adolescent and young adults (AYA) Cancer Survivor COVID-19 Survey section titled, "COVID-19 Related Distress (Emotional and Physical Reactions) and Health Behaviors.'' This survey includes both a 5-level Likert scale for the respondent's current level of concern (Not at all, A little, Neutral, A lot, Very Much), plus an ordinal 3-level scale for the respondent to rate the perceived level of change compared to before COVID-19 (Less, Same, More). Responses to individual questions will be summarized at each time point as means (for the Likert scale) and percentages (for discrete levels of change), together with 95% confidence intervals. For each question, will also summarize the percentages of patients in each group checking one of the 3 levels (Less, Same, More) indicating whether they perceived a change in that question since before COVID-19.