The T1D Exchange Registry

{ "The T1D Exchange Registry for Type 1 Diabetes", "The T1D Exchange Registry is an ongoing research study for people with type 1 diabetes and their families. This study doesn't test a new medicine; instead, it gathers information over time to better understand type 1 diabetes. You would share your health information through annual surveys. This helps researchers learn more about living with type 1 diabetes. To join, you need to have a diagnosis of type 1 diabetes, live in the United States, and be able to read and understand English. If you are under 18, a parent or guardian needs to give permission. The goal is to collect information for 10 years to create a large dataset for future research.", "design": "This is an observational study, meaning it collects information without testing a specific intervention. It aims to enroll 50,000 participants.", "commitments": "You will read and sign an online consent form, complete an initial survey, and update your information annually. You may also choose to participate in additional research opportunities.", "compensation": "Not stated in the trial record.", "follow_up": "Participants will be followed for 10 years to gather longitudinal data.", }

Study design
Not specified.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
Not specified.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT04629586

The T1D Exchange Registry

Recruiting
Not specifiedAll AgesObservational
T1D Exchange, United States
~50,000 participants
Updated 2023-05-08 on ClinicalTrials.gov
What's tested:No intervention

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Gather longitudinal data from individuals living with type 1 diabetes.
Measured over 10 years
Diabetes Mellitus, Type 1
Diabetes
Type 1 Diabetes
Diabetes Mellitus
1 sites across 1 states
Massachusetts1

Opens a ready-to-send draft in your own email app — review before sending.

Do you actually qualify for this trial?

Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.

Check eligibility for this trial ~2 min · HIPAA-protected · delete anytime
Eligibility criteria

Inclusion

Clinical diagnosis of type 1 diabetes.
Individuals younger than 18 years of age must have parent/guardian consent.
Must be able to read and understand English.
Currently living in the United States

Exclusion

Does not use insulin and has not had a pancreatic or islet cell transplant.
Cannot fully read and understand English.
Does not currently live in the United States.
  • Gather longitudinal data from individuals living with type 1 diabetes.10 years

    Gather longitudinal data on disease, health status, and patient-reported outcomes of individuals living with type 1 diabetes. This will be achieved by presenting participants with annual questionnaires, tracking any changes in their responses over time.