Registry for Desmoplastic Small Round Cell Tumor
This is a patient registry for individuals with Desmoplastic Small Round Cell Tumor (DSRCT). A registry collects health information to help researchers better understand a specific disease. The goal of this registry is to create a database of information about DSRCT. This database will be used for current and future research to learn more about DSRCT. You can join if you have a DSRCT diagnosis, are willing to share your past and ongoing health information, and can provide consent. This study is collecting information over 7 years.
- Study design
- This is an observational study, meaning researchers will collect health information without providing any specific treatments. It plans to include 250 participants.
- What's involved
- You would need to provide historical and ongoing clinical data.
- Compensation
- Not stated in the trial record.
- Follow-up
- Information will be collected for 7 years.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Emily Slotkin, MD · PRINCIPAL_INVESTIGATOR · Memorial Sloan Kettering Cancer Center
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
Do you actually qualify for this trial?
Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.
Inclusion
Exclusion
What this trial measures
- Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor7 years
The aim of this study is the collection of data.