This study is looking at the health and well-being of people with Androgen Insensitivity Syndrome (AIS). AIS is a rare condition where the body doesn't properly respond to male hormones (androgens). Researchers want to understand how AIS affects different aspects of health, including metabolism, bone health, and the risk of tumor formation. They also want to learn more about sexual function and overall quality of life for individuals with AIS. The study aims to gather information from 650 participants aged 8 to 99 years old who have a confirmed diagnosis of AIS. This is an observational study, meaning researchers will collect information over time without giving any specific treatments.

Study design

This is an observational study aiming to enroll 650 participants. It is a natural history study, meaning researchers will observe participants over time without providing specific interventions.

What's involved

Not specified in the trial record.

Compensation

Not stated in the trial record.

Follow-up

Information will be collected until the end of the study, but the specific duration of follow-up for individual participants is not specified.

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