LLS National Research Registry for Blood Cancer
The Leukemia and Lymphoma Society (LLS) is creating a National Research Registry to learn more about the real-world experiences and medical outcomes of people with blood cancer. This registry will collect information from people who are undergoing any and all treatments for blood cancer. The goal is to understand how different treatments affect people over time. You can join if you have blood cancer, whether you are before, during, or after treatment, and are at least 21 years old. The study aims to track outcomes for up to 10 years. The current recruitment status is unclear.
- Study design
- This is an observational study, meaning researchers will collect information about your experiences and medical data over time. It plans to include about 1000 participants.
- What's involved
- You would provide information about your health and medical history. You would also give permission for LLS to collect your medical records and to share summary data (without your personal identifiers) with research partners. You may be contacted periodically to provide updated medical information.
- Compensation
- Not stated in the trial record.
- Follow-up
- Your outcomes will be monitored for 10 years.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
The Leukemia and Lymphoma Society (LLS) National Research Registry
At a glance
Conditions
Where it's being run
1 sites across 1 statesWho to contact
Opens a ready-to-send draft in your own email app — review before sending.
What this trial measures
- LLS will monitor outcomes of people being treated for blood cancer.10 years
. The LLS National Research Registry will collect data on up to 1000 research subjects, over up to 10 years, storing that data, including protected health information (PHI) and images, in secure databases, and share de-identified summary data with research partners (like academic researchers, advocacy groups, and pharmaceutical companies) that are advancing treatments for blood cancer. Participation in The LLS National Research Registry may not give research subjects any immediate benefit. It is hoped the knowledge gained from data collected in The LLS National Research Registry will benefit people with blood cancers in the future using this information for research purposes, directed at blood cancers and associated comorbidities.