Pulmonary Hypertension Biorepository and Registry
This study is creating a registry and collection of blood samples (biorepository) from people with pulmonary hypertension (high blood pressure in the arteries to the lungs). The goal is to better understand the disease and help develop future treatments. Researchers will collect clinical information and blood samples from participants. You may be able to join if you are 18 or older, are a patient at TUKHS or have agreed to participate in a study approved by KUMC, and have a confirmed diagnosis of pulmonary hypertension. The study aims to enroll 300 participants. The current recruitment status is unclear.
- Study design
- This is an observational study, meaning no specific intervention is being tested. It plans to include 300 participants.
- What's involved
- Researchers will collect your clinical data for up to 6 months and biospecimens (like blood samples) for up to 12 months.
- Compensation
- Not stated in the trial record.
- Follow-up
- Clinical data will be collected from enrollment to 6 months, and biospecimens will be collected from enrollment to 12 months.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Pulmonary Hypertension Biorepository and Registry
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Leslie A Spikes, MD · PRINCIPAL_INVESTIGATOR · Assistant Professor of Medicine
- Luigi R Boccardi, Ed.D., MPH · STUDY_DIRECTOR · Director of Pulmonary Research
Who to contact
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What this trial measures
- Collect Clinical DataFrom Enrollment to 6 Months
Collect clinically obtained data from current and deceased patients with pulmonary hypertension to support research.
- Establish a BiorepositoryFrom Enrollment to 6 Months
Establish a collection of biospecimens from patients with pulmonary hypertension.
- Biospecimens CollectionFrom Enrollment to 12 Months
Correlate biospecimens to longitudinally collected individual patient data.
- CollaborateFrom Enrollment to 24 Months
Provide biospecimens to researchers investigating pulmonary hypertension. Separate IRB approval will be needed for these studies.