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UVA Natural History Study for Interstitial Lung Diseases

This study at the University of Virginia is observing people with Interstitial Lung Disease (ILD), including Idiopathic Pulmonary Fibrosis (IPF), Sarcoidosis, Connective Tissue Diseases, and Hypersensitivity Pneumonitis. Researchers are collecting information and samples over time to better understand how these diseases progress and how different treatments might affect them. They are also including family members without ILD as a comparison group. The goal is to identify trends that could lead to a better understanding of disease progression, treatment options, and outcomes. This is an observational study, meaning there are no interventions or new treatments being tested. The study is currently enrolling up to 2500 participants.

Study design
This is an observational study with a planned enrollment of 2500 participants. It is not testing any specific intervention.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
You would be followed yearly from the date of consent until you are lost to follow-up or death occurs, for up to 144 months (12 years).

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT04896138

University of Virginia Natural History Study

Enrolling by Invitation
Not specifiedAges 18+Observational
University of Virginia
~2,500 participants
Updated 2024-05-08 on ClinicalTrials.gov
What's tested:Interstitial Lung Disease

At a glance

Recruiting sites
0 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Clinical Course of Disease
Measured over Yearly from date of consent until subject is lost to follow-up or death occurs, whichever comes first, assessed up to 144 months
+1 more outcome measured

Conditions

Interstitial Lung Disease
Idiopathic Pulmonary Fibrosis
Sarcoidosis
Connective Tissue Diseases
Hypersensitivity Pneumonitis
Idiopathic Interstitial Pneumonias

Explore related trials

Connective Tissue DisorderExtrinsic Allergic AlveolitisIdiopathic Interstitial PneumoniaIdiopathic Pulmonary FibrosisInterstitial Lung DiseaseSarcoidosis

Where it's being run

1 sites across 1 states
Virginia1

Study leadership

  • Imre Noth, MD · PRINCIPAL_INVESTIGATOR · University of Virginia Health System
  • Yousef Althulth, MD · STUDY_DIRECTOR · University of Virginia Health System

Who to contact

This trial hasn't published a contact. View it on ClinicalTrials.gov

Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

Patient presenting to University of Virginia ILD or Pulmonary clinic
Family members accompanying patients (as control subjects)

Exclusion

Control subjects cannot have ILD

What this trial measures

  • Clinical Course of DiseaseYearly from date of consent until subject is lost to follow-up or death occurs, whichever comes first, assessed up to 144 months

    Course of disease in patients with ILD will be reviewed prospectively for the duration of the study

  • Subject deathsYearly from date of consent until subject is lost to follow-up or death occurs, whichever comes first, assessed up to 144 months

    Causes of death in patients with ILD will be reviewed prospectively for the duration of the study