The CATNAP study is a registry for children and adolescents with narcolepsy. It aims to gather information to better understand how narcolepsy develops and progresses in young people. Researchers want to learn about how narcolepsy is identified and diagnosed, and what treatments are used and why they might change. This study is for children and adolescents under 18 who have a doctor-confirmed diagnosis of narcolepsy and can participate in English. There are no specific interventions being tested; instead, the study collects information over a period of up to four years. The study is currently unclear on its status but plans to enroll 500 participants and has 16 active sites, plus a virtual option for those anywhere in the United States.

Study design

This is an observational study, meaning researchers will collect information about participants over time without testing a specific treatment. It plans to enroll 500 participants.

What's involved

Not specified in the trial record.

Compensation

Not stated in the trial record.

Follow-up

Participants will be followed for up to 4 years to understand the natural history of narcolepsy and treatment outcomes.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.