Parkinson's Disease and Movement Disorders Clinical Database

This is an observational study, meaning it collects information over time rather than testing a specific treatment. Researchers are gathering detailed information from people with Parkinson's disease, Parkinson's disease dementia, Lewy body Parkinson's disease, and Lewy body dementia with behavioral disturbance. This includes your medical history, symptoms, and how you respond to treatments. The goal is to understand the long-term effects of these conditions and identify genetic and biological factors that influence them, which could lead to better ways to diagnose and manage symptoms. You may be eligible to participate if you receive care for Parkinson's disease with mild cognitive impairment (MCI) or dementia, and can complete the study assessments.

Study design
This is an observational study that plans to enroll 250 participants. It is not testing a specific drug or intervention.
What's involved
You would provide demographic and family history information, and complete neuropsychiatric and cognitive testing questionnaires, including assessments like the Geriatric Depression Scale and Quality of Life Questionnaire.
Compensation
Not stated in the trial record.
Follow-up
The study aims to measure the long-term effects of Parkinson's disease and genetic/neurobiological factors over 5 years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT04997642

Parkinson's Disease and Movement Disorders Clinical Database

Recruiting
Not specifiedAges 18+Observational
University of Pennsylvania
~250 participants
Updated 2025-10-07 on ClinicalTrials.gov
What's tested:neuropsychiatric and cognitive testing questionnaires

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Long term effects of Parkinson's disease
Measured over 5 years
+1 more outcome measured
Parkinson Disease
Parkinson Disease Dementia
Lewy Body Parkinson Disease
Lewy Body Dementia With Behavioral Disturbance

NCT04997642

Where you'd take part

This study runs at 1 site. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.

  • University of Pennsylvania

    Philadelphia, Pennsylvaniastudy coordinator listed

    Recruiting

Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.

Opens a ready-to-send draft in your own email app — review before sending.

  • Long term effects of Parkinson's disease5 years

    Determine the long term effects of Parkinson's disease and related conditions, including predictors of its motor and non-motor symptoms

  • Genetic and Neurobiological factors5 years

    Identify genetic and other neurobiological factors related to the risk of developing Parkinson's disease and related disorders and their course