Parkinson's Disease and Movement Disorders Clinical Database
This is an observational study, meaning it collects information over time rather than testing a specific treatment. Researchers are gathering detailed information from people with Parkinson's disease, Parkinson's disease dementia, Lewy body Parkinson's disease, and Lewy body dementia with behavioral disturbance. This includes your medical history, symptoms, and how you respond to treatments. The goal is to understand the long-term effects of these conditions and identify genetic and biological factors that influence them, which could lead to better ways to diagnose and manage symptoms. You may be eligible to participate if you receive care for Parkinson's disease with mild cognitive impairment (MCI) or dementia, and can complete the study assessments.
- Study design
- This is an observational study that plans to enroll 250 participants. It is not testing a specific drug or intervention.
- What's involved
- You would provide demographic and family history information, and complete neuropsychiatric and cognitive testing questionnaires, including assessments like the Geriatric Depression Scale and Quality of Life Questionnaire.
- Compensation
- Not stated in the trial record.
- Follow-up
- The study aims to measure the long-term effects of Parkinson's disease and genetic/neurobiological factors over 5 years.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Parkinson's Disease and Movement Disorders Clinical Database
At a glance
Conditions
NCT04997642
Where you'd take part
This study runs at 1 site. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.
University of Pennsylvania
Philadelphia, Pennsylvaniastudy coordinator listed
Recruiting
Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
What this trial measures
- Long term effects of Parkinson's disease5 years
Determine the long term effects of Parkinson's disease and related conditions, including predictors of its motor and non-motor symptoms
- Genetic and Neurobiological factors5 years
Identify genetic and other neurobiological factors related to the risk of developing Parkinson's disease and related disorders and their course