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AnovaOS Network Powered Patient Registry for Various Conditions

This study is creating a patient registry to collect real-world health information from people aged 18 and older who have a confirmed diagnosis of an infectious disease, cancer, blood disorder, immune system disorder, endocrine (hormone), nutritional, metabolic disease, or mental and behavioral disorder. The registry aims to understand the natural course of these conditions, their treatments, and outcomes over five years. It will also assess the effectiveness and safety of treatments. This registry will help researchers better understand these diseases and find participants for future clinical trials.

Study design
This is an observational study, meaning researchers will collect information without giving any specific interventions. The study plans to enroll 100,000 participants.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
The study will assess natural history, clinical effectiveness, and safety over five years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT05013944

AnovaOS Network Powered Patient Registry

Recruiting
Not specifiedAges 18+Observational
Anova Enterprises, Inc
~100,000 participants
Updated 2024-01-30 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Assess Natural history
Measured over 5 years
+3 more outcomes measured

Conditions

Infectious Disease
Neoplasms
Diseases of the Blood and Blood-Forming Organs and Certain Disorders Involving the Immune Mechanism (D50-D89)
Endocrine, Nutritional and Metabolic Diseases (E00-E89)
Mental and Behavioural Disorders
Diseases of the Nervous System
Diseases of the Eye and Adnexa
Diseases of the Ear and Mastoid Process
Diseases of the Circulatory System
Diseases of the Respiratory System
Diseases of the Digestive System
Diseases of the Skin and Subcutaneous Tissue
Diseases of the Musculoskeletal System and Connective Tissue
Diseases of the Genitourinary System
Pregnancy, Childbirth and the Puerperium
Certain Conditions Originating in the Perinatal Period
Congenital Malformations, Deformations and Chromosomal Abnormalities (Q00-Q99)
Symptoms, Signs and Abnormal Clinical and Laboratory Findings, Not Elsewhere Classified
Injury, Poisoning and Certain Other Consequences of External Causes
External Causes of Morbidity and Mortality
Factors Influencing Health Status and Contact With Health Services

Explore related trials

Cardiovascular DisorderInfectious DisorderNeoplasmNervous System DisorderUrinary System Disorder

Where it's being run

1 sites across 1 states
Illinois1

Study leadership

  • Martin Walsh · STUDY_DIRECTOR · Anova Enterprises, Inc
  • Christopher Beardmore · PRINCIPAL_INVESTIGATOR · Anova Enterprises, Inc

Who to contact

Christopher Beardmore
[email protected]
+1 (224) 218-2408
Email the study team

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Eligibility criteria

Inclusion

18 years old or older;
Confirmed positive diagnosis of disease, condition or disorder. This will be self-reported or reported by the patient's provider, advocacy group or other patient representative;
Laboratory or other independent means of confirmation is not required but may be confirmed in clinical trials;
Able to understand and willing to sign the informed consent document; or whose legal representative has given consent to participate in the research per state and Federal requirements;
Willing and able to complete the registry questions or have the instrument(s) completed by an informed proxy;
Anticipated additional follow up with the registry once per year.
Subjects who are unable to understand the protocol or unable to provide legally effective informed consent

What this trial measures

  • Assess Natural history5 years

    Assessing natural history, including estimating the magnitude of a problem; determining the underlying incidence or prevalence rate of a condition; examining trends of disease over time; assessing service delivery and identifying groups at high risk; and describing and estimating survival;

  • Assess Clinical, Cost and/or Comparative Effectiveness5 years

    Determining clinical effectiveness, cost effectiveness, or comparative effectiveness of a test or a treatment;

  • Assess Safety5 years

    Measuring and monitoring safety and harm associated with the use of specific products and treatments, including conducting comparative evaluation of safety and effectiveness;

  • Measuring and/or Improving Quality of Care5 years

    Measuring or improving quality of care, including conducting programs to measure and/or improve the practice of medicine and/or public health.