PPMI Online: Understanding Parkinson's Disease
PPMI Online is an observational study that collects information from people with and without Parkinson's disease (PD). The goal is to better understand what puts someone at risk for PD and what factors predict its development. This study is part of a larger effort, the Parkinson Progression Marker Initiative, which aims to find markers that show how PD is changing over time. These markers could then be used in future studies to test new treatments that might slow down or stop the progression of PD. Researchers will be looking at how your Parkinson's symptoms change over a long period, up to 240 months (20 years). The study is currently recruiting, and they plan to enroll up to 500,000 participants. You can join if you are 18 years or older, with or without a diagnosis of Parkinson's disease.
- Study design
- This is an observational study, meaning researchers will collect information without giving any specific treatments. It aims to enroll up to 500,000 participants.
- What's involved
- Not specified in the trial record.
- Compensation
- Not stated in the trial record.
- Follow-up
- Participants will be followed for up to 240 months (20 years) to assess changes in their Parkinson's symptoms.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Parkinson Progression Marker Initiative Online (PPMI Online)
At a glance
Conditions
NCT05065060
Where you'd take part
This study runs at 1 site. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.
UCSF Movement Disorders and Neuromodulation Center (MDNC)
San Francisco, Californiastudy coordinator listed
Recruiting
Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.
Study leadership
- Caroline Tanner, MD, PhD · PRINCIPAL_INVESTIGATOR · University of California, San Francisco
- Kenneth L Marek, MD · PRINCIPAL_INVESTIGATOR · Institute for Neurodegenerative Disorders
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
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Inclusion
What this trial measures
- Unified Parkinson's Disease Rating Scale Ib & IIBaseline to 240 months
Evaluates self-reported motor and nonmotor Parkinson's disease symptoms