Clemizole HCl for Lennox-Gastaut Syndrome

This study is testing a drug called Clemizole HCl to see if it can help people with Lennox-Gastaut Syndrome (LGS), a severe form of epilepsy. Researchers want to find out if Clemizole HCl is safe and effective when added to a patient's current medications. You might be able to join if you are between 2 and 55 years old and have been diagnosed with LGS, including having at least one type of major motor seizure. The main way success will be measured is by looking at the percentage change in your seizures over 16 weeks. The study plans to enroll 260 participants, but its current recruitment status is unclear.

Study design
This is a Phase 3, randomized, double-blind, placebo-controlled study involving approximately 260 participants. This means some participants will receive Clemizole HCl and others will receive a placebo (an inactive substance) without knowing which they are getting.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
The primary endpoint measures changes up to 16 weeks, and there is an optional Open-Label Extension Period, but the total follow-up duration is not specified.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT05066217

An Efficacy and Safety Study of Clemizole HCl in Patients With Lennox-Gastaut Syndrome

Recruiting
PHASE3Ages 2–55InterventionalTreatment
Epygenix
~260 participants
Updated 2026-09-15 on ClinicalTrials.gov
What's tested:Clemizole HClPlacebo

At a glance

Recruiting sites
53 of 58 listed sites are recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Percent Change in CMMS-28
Measured over From Baseline Period up to 16 weeks
Lennox Gastaut Syndrome

NCT05066217

Where you'd take part

This study runs at 58 sites. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.

  • Atrium Health STRIVE Research

    Charlotte, North Carolinastudy coordinator listed

    Recruiting

  • Children's Nebraska

    Omaha, Nebraskastudy coordinator listed

    Recruiting

  • Duke University Medical Center

    Durham, North Carolinastudy coordinator listed

    Recruiting

  • Minnesota Epilepsy Group, P.A.

    Roseville, Minnesotastudy coordinator listed

    Recruiting

  • Norton Children's Medical Center

    Louisville, Kentuckystudy coordinator listed

    Recruiting

  • On-Site Clinical Solution

    Charlotte, North Carolinastudy coordinator listed

    Recruiting

  • PPD Virtual-Science 37, Inc.

    Morrisville, North Carolinastudy coordinator listed

    Recruiting

  • Re:Cognition Health

    Chicago, Illinoisstudy coordinator listed

    Recruiting

Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.

  • Amit Ray, MD · STUDY_DIRECTOR · Harmony Biosciences Management, Inc.

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Eligibility criteria

Inclusion

Evidence of at least one type of countable major motor seizure.
History of electroencephalogram (EEG) consistent with LGS (abnormal background activity, and one of the following: 1) slow spike-wave discharges \[\<2.5 Hz\], or 2) paroxysmal fast activity during sleep).
Abnormal cognitive development.
Onset of seizures at 11 years of age or younger.
  • Percent Change in CMMS-28From Baseline Period up to 16 weeks

    Percent change in CMMS-28 from the Baseline Period through the end of the DB Period