Parkinson's Foundation Surveys

This is an observational study by the Parkinson's Foundation to better understand what it's like to live with Parkinson's disease (PD). It involves periodically surveying people with PD, their care partners, and medical professionals. The study aims to gather information from a large number of people over 10 years to understand different aspects of living with PD. You can join if you are 18 or older and self-report having PD, are a care partner for someone with PD, or are a health professional who works with people with PD. The study is looking for a total of 1,000,000 participants.

Study design
This is an observational study with no specified phase, aiming to enroll 1,000,000 participants.
What's involved
You would need to be willing to be contacted by the Parkinson's Foundation for surveys and future research opportunities.
Compensation
Not stated in the trial record.
Follow-up
The primary endpoint, total number of survey respondents, is measured at 10 years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT05066763

Parkinson's Foundation Surveys

Recruiting
Not specifiedAges 18+Observational
Parkinson's Foundation
~1,000,000 participants
Updated 2021-10-04 on ClinicalTrials.gov
What's tested:Non-interventional

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Total number of survey respondents
Measured over 10 years
Parkinson Disease

NCT05066763

Where you'd take part

This study runs at 1 site. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.

  • Parkinson's Foundation

    Miami, Floridastudy coordinator listed

    Recruiting

Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.

Opens a ready-to-send draft in your own email app — review before sending.

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Eligibility criteria

Inclusion

Willingness to be contacted by the Parkinson's Foundation for surveys and any future research opportunities
Anyone who self-reports that they have a diagnosis of Parkinson's disease
Care partner of a person with Parkinson's disease
Any health professional that regularly works with people with Parkinson's disease
18 years of age or older

Exclusion

People who report that they do not have a diagnosis of Parkinson's disease, are not a care partner to someone with PD or do not work with people with PD in the health setting
An individual younger than 18 years of age
  • Total number of survey respondents10 years

    Total number of survey participants who consent into the study