UNC Childhood, Adolescent, and Young Adult Cancer Cohort (UNC-CAYACC)

This study, called the UNC Childhood, Adolescent, and Young Adult Cancer Cohort (UNC-CAYACC), is creating a registry of children, adolescents, and young adults (up to age 39) who have been diagnosed with cancer. The goal is to gather information to help researchers better understand cancer outcomes in these age groups, especially for those aged 15-39. You can join if you are between 1 and 39 years old, speak English or Spanish, and have been diagnosed with cancer. The study will involve physical and mental assessments, questionnaires about your health and quality of life, body measurements, and providing samples for future research. The main goals are to build this registry and complete functional assessments over five years.

Study design
This is an observational study, meaning researchers will collect information without giving any specific treatments. It plans to enroll about 500 participants.
What's involved
You would complete physical and cognitive assessments, fill out questionnaires, have body measurements taken, and provide biospecimens (like blood or tissue samples).
Compensation
Not stated in the trial record.
Follow-up
The study aims to develop the registry and complete functional assessments over five years.

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NCT05096923

UNC Childhood, Adolescent, and Young Adult Cancer Cohort

Recruiting
Not specifiedAges 1–39Observational
UNC Lineberger Comprehensive Cancer Center
~500 participants
Updated 2026-05-12 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Registry development
Measured over Five years
+1 more outcome measured
Pediatric Cancer
Cancer
Cancer Metastatic
Survivorship
1 sites across 1 states
North Carolina1
  • Andrew Smitherman, MD · PRINCIPAL_INVESTIGATOR · University of North Carolina, Chapel Hill

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Eligibility criteria

Inclusion

Patient ages 0-39 years at the time of cancer diagnosis (ages 1-39 years at enrollment) who are at any point in treatment and survivorship trajectory
English or Spanish speaking

Exclusion

Unwilling to sign informed consent
Speak a language other than English or Spanish.
  • Registry developmentFive years

    Creation of a registry of pediatric and young adult patients with cancer treated within the University of North Carolina Health System

  • Functional assessmentsFive years

    Assess feasibility for completing repeated physical and cognitive functional assessments among young cancer survivors. These assessments include measures of physical and general frailty.