Video Education for Genetic Testing in Hereditary Cancers

This study is looking at ways to make genetic testing education more accessible for people at risk of hereditary cancers, especially Black and Latinx individuals. It compares an 8-minute "Video Education" video, which summarizes genetic counseling, with standard genetic counseling. The goal is to see how well the video education is accepted by participants. You might be able to join if you are 18 or older, have or had certain cancers like breast, ovarian, pancreatic, or prostate cancer, and can understand English or Spanish. The study is currently unclear on its status and plans to enroll 1020 people.

Study design
This study has two parts: a qualitative assessment with 20 participants and a randomized controlled trial with 1000 participants. The randomized trial will compare Video Education to standard genetic counseling.
What's involved
In the qualitative part, you would watch an 8-minute video and then have a short interview by video or phone. For the randomized trial, the specific commitments are not detailed.
Compensation
Not stated in the trial record.
Follow-up
For the qualitative interview study, acceptability of the video education will be measured at 3 weeks. Follow-up for the randomized controlled trial is not specified.

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NCT05225428

Video Education With Result Dependent dIsclosure

Recruiting
NAAges 18+InterventionalHealth services
Dana-Farber Cancer Institute
~1,020 participants
Updated 2026-05-22 on ClinicalTrials.gov
What's tested:Video EducationGenetic Counseling

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Video Education Acceptability (Qualitative Interview Study)
Measured over 3 Weeks
Genetic Testing
Breast Cancer
Ovarian Cancer
Pancreatic Cancer
Prostate Cancer
Colorectal Cancer
Renal Cancer
Melanoma
Sarcoma
1 sites across 1 states
Massachusetts1
  • Huma Q. Rana, MD., MPH · PRINCIPAL_INVESTIGATOR · Dana-Farber Cancer Institute

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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

Age ≥ 18 years
Current or prior diagnosis of breast cancer, ovarian cancer, pancreatic cancer, prostate cancer, colorectal cancer, renal cancer, melanoma, or sarcoma
Ability to understand spoken or written English or Spanish in a healthcare context
Ability to understand and the willingness to sign a written informed consent document
Black or Latinx (qualitative assessment study only)

Exclusion

Prior cancer genetic testing
Prior germline genetic testing
Active hematologic malignancy (e.g. chronic lymphocytic leukemia)
Currently pregnant
Currently incarcerated
  • Video Education Acceptability (Qualitative Interview Study)3 Weeks

    Pre- and post-test of knowledge of hereditary cancer risk and cancer genetic counseling with qualitative patient interview question domains and instruments to assess understanding of language and imagery of video education as correlated with measures of health literacy.